Saturday, March 20, 2010

A catch up on how Scott is:

I figured it was time to update you all on Scott.  On Tuesday he went in for a follow up appointment.  They did a MRI of his bones - being especially concerned with his spine and pelvis - and it all came back negative for any abnormalities (i.e. Tumors) which we are very, very happy about.  They did a blood test to check his CEA levels (basically a tumor marker test) which came back at 2.8 - within normal range finally!  Another great thing considering those levels were up to 18 before we had surgery in January.  The real indicator with Medullary Carcinoma though are his Calcitonin blood levels which have been sent off to Mayo for evaluation and we should have results back sometime next week.
Scott has still been pretty tired and just kind of Blah feeling so it wasn't much of a surprise to us that he is still quite Hypothyroid with a TSH (thyroid hormone level) of 13.  The normal range for that test is 1-5.  SO, to combat that we have changed all of his meds up again this week.  They added a T3 medication (the active form of thyroid hormone that works immediately) and increased the dose of his T4 medication (the more continuous form of thyroid hormone that isn't as fast or short acting) that he has been taking since surgery.  We are hoping that this will help improve his mood, as well as energy and metabolism levels and help fight the Blahs.
Some of you know this, but I don't think I ever posted on here that they did a Genetic Screen on Scott due to the fact that often this type of cancer runs in families.  If the screen were positive Scott's brother's would have needed to be screened as well (as they could have been at risk for developing this kind of cancer), and our future children probably would have needed Thyroidectomies at a young age due to the fact that they would be at such a great risk for developing this kind of cancer as well.  We are very blessed that his gene typing came back negative for it, which is a huge relief in that now we know this was the Sporadic form of cancer that he got.
Everyday Scott's voice gets stronger and it seems to be getting close to back to normal and easier for him to project, which we are very thankful for.  It is becoming less and less frustrating for him to talk on the phone (people aren't saying, "What?" "Wait, say that again?" as much anymore), order food when we're out and about, and just communicate in general.  Scott has started working again.  He started out doing six hour shifts at the end of last month and has now gone up to eight hour shifts, with the hope of being able to handle 12 hour shifts again next month.  We're very happy with all his progress and it is very gratifying for him to be back in the ER doing what he loves.
So, in general everything is on the up and up it looks like.  We do another CT Scan of Scott's head, neck and chest in June or July to see if there are any more tumors and if the spots on his lung have grown.  For now it's a waiting game and we're gradually getting back to normal life.  Thank you all for your prayers and word of encouragement.  It's been so nice getting cards and sweet messages from so many of you and it's helped lighten our load knowing that so many people care.

3 comments:

luke said...

Some good news! Good to hear you all getting back to some normalcy. So ... when are you coming to Tulsa ?! ;)

Esther Crouch said...

I'm with Luke! :) Praying for the next round of CTs ... and hoping to come visit in the next few months if Mark's vacay time works out! Love you guys

zcoffeegirl said...

Thanks for the update, sweets...we will keep praying...so glad for "normal life". Love you!!!